We did find out it is called a "Ewing Sarcoma". This type is generally found in younger (10 - 20 years old) people and usually in the extremities and is generally a "bone" cancer. It is not always in the bone tissue, but can be in the muscle tissue and can "rarely" get in the nerve sheath. They say this is very rare because of the location and with his age. We are doing what they call "staging" gathering all the information they can before we do decide on a treatment plan.
They did do a bone marrow test today and also took biopsy off the bone. Yes, it was very painful for him. Monday I will have to take him back to the hospital for more testing. They are going to run a bone scan (which takes about 4 - 5 hours) and do a full body CT scan to include all the parts they didn't get last month.
Every Tuesday they have what the doctor referred to as a "sarcoma" conference. The Doctor with take Michael's case, present it to them and discuss it. It's a team of oncologists, orthopedic surgeons, and a bunch of other medical professions involved in cancer here in the Dallas area.
We will go back to see the Oncologist next Thursday to follow up with the testing and the meeting. At that point we may discuss treatment or the may send him down to MD Anderson in Houston and have them do a workup for a second opinion.
Generally the way they would treat this is with Chemo, Radiation, and then possible removal, but they had already removed it. Right now he is not real sure what treatment options they are going to go with. He did say he does want to go after it progressively.
They are talking possibly both Chemo and Radiation but due to the rarity of this (his age and the location of the sarcoma) they are not real sure if the Chemo will even get to the effected area. He did say it is likely it could come back if we do nothing.
Please keep us in your thoughts and prayers!!
No comments:
Post a Comment