Michael did fairly well the last three days with his treatment. He had a little nausea each day, but nothing we could not control. His fatigue has really sat in. Right now we are playing the waiting game. We are still at the hospital waiting on getting his Nuelasta shot. He’s not scheduled to get it until 5:00 this evening so we wait and wait. I could take him home and return in the morning for his shot, but waiting would just be easier with the drive we have and once I get him home, he don’t move for a few days.
Michael had some visitors this time while we were here. On Thursday, Rachel and David came by and we had a great visit with them. They are the young couple we met during Michael’s 4th treatment. Rachel has Ewing’s in the pelvic. She is an amazing young woman with great strength, spirit, and faith to overcome this. It was nice to see her and Michael share their stories and Michael offering his thoughts to her. Depending on how his stomach feels today, we are going to try to stop in and see them before we leave.
Yesterday, he had a visit from his nieces, Lily (4) and Tona (2). Our daughter tagged along with them, which gave Michael a chance to pick on her. This was the first time the little ones got a chance to come see Uncle Mike. They know each time he goes in for his medicine and comes home not feeling well.
When they got here I took them to the gift shop for them to get Michael some balloons. They each picked him up a little stuffed animal each which they took home with them to be safe. The big balloon actually sings “Celebrate” so Lily had fun turning it on and on having a “show” for everyone. She even had a show for Michael’s aide.
We are extremely excited for this to be his very last treatment. On one hand, we are so happy to get past this every three week cycle of hospital, recovery, a week of being able to do a little to starting all over. But on the other hand, he has had some of the nicest nurses and aides taking care of him. With Michael’s humor, they all love him. I don’t think there is a single nurse / aide he didn’t get along with. To all you ladies, and one gentleman, you are truly amazing people and you all show the love and compassion needed, not just to the patient but to the family as well. We can never thank you enough. Don’t worry, Michael has not left ya’ll forever, you know he WILL be back to pick on ya!! We love you guys!!
This evening, I will take him home, he will do his normal go to his room and stay in there until about Tuesday or Wednesday, and then he will start working on slowing building back his strength. We should begin his various scans and doctors’ appointments in three weeks.
Once we are done, watch out Kansas City because here we come and there will be one great big CELEBRATION. We have so many family and friends in Kansas City that we have not been able to see in quite a while; we felt this would be the best place. We also ask those of you in Kansas City also fighting sarcoma, please join us. We have been watching, praying, and following your journeys and we know some of you have been following Michael’s and we consider you as family too.
We will continue to update each of you on Michael’s progress, scans, and of course the PARTY. Michael and I each have a facebook and once we have a date set for his PARTY, we will be sending out an Event Invitation. If you would like to friend us, please send an invite. We would love it. (Michael Irwin, yes the Michael with the green hair or Melodie Irwin)
Please continue to pray for all our beautiful sarcoma warriors. We love each of them and we need to continue to lift them up. Also, please continue to pray for a cure. I will update everyone later to let you know he is home. And thank you once again for all the prayers and words of encouragement from everyone. We love all of you!!!!
Melodie
Michael had some visitors this time while we were here. On Thursday, Rachel and David came by and we had a great visit with them. They are the young couple we met during Michael’s 4th treatment. Rachel has Ewing’s in the pelvic. She is an amazing young woman with great strength, spirit, and faith to overcome this. It was nice to see her and Michael share their stories and Michael offering his thoughts to her. Depending on how his stomach feels today, we are going to try to stop in and see them before we leave.
Yesterday, he had a visit from his nieces, Lily (4) and Tona (2). Our daughter tagged along with them, which gave Michael a chance to pick on her. This was the first time the little ones got a chance to come see Uncle Mike. They know each time he goes in for his medicine and comes home not feeling well.
When they got here I took them to the gift shop for them to get Michael some balloons. They each picked him up a little stuffed animal each which they took home with them to be safe. The big balloon actually sings “Celebrate” so Lily had fun turning it on and on having a “show” for everyone. She even had a show for Michael’s aide.
We are extremely excited for this to be his very last treatment. On one hand, we are so happy to get past this every three week cycle of hospital, recovery, a week of being able to do a little to starting all over. But on the other hand, he has had some of the nicest nurses and aides taking care of him. With Michael’s humor, they all love him. I don’t think there is a single nurse / aide he didn’t get along with. To all you ladies, and one gentleman, you are truly amazing people and you all show the love and compassion needed, not just to the patient but to the family as well. We can never thank you enough. Don’t worry, Michael has not left ya’ll forever, you know he WILL be back to pick on ya!! We love you guys!!
This evening, I will take him home, he will do his normal go to his room and stay in there until about Tuesday or Wednesday, and then he will start working on slowing building back his strength. We should begin his various scans and doctors’ appointments in three weeks.
Once we are done, watch out Kansas City because here we come and there will be one great big CELEBRATION. We have so many family and friends in Kansas City that we have not been able to see in quite a while; we felt this would be the best place. We also ask those of you in Kansas City also fighting sarcoma, please join us. We have been watching, praying, and following your journeys and we know some of you have been following Michael’s and we consider you as family too.
We will continue to update each of you on Michael’s progress, scans, and of course the PARTY. Michael and I each have a facebook and once we have a date set for his PARTY, we will be sending out an Event Invitation. If you would like to friend us, please send an invite. We would love it. (Michael Irwin, yes the Michael with the green hair or Melodie Irwin)
Please continue to pray for all our beautiful sarcoma warriors. We love each of them and we need to continue to lift them up. Also, please continue to pray for a cure. I will update everyone later to let you know he is home. And thank you once again for all the prayers and words of encouragement from everyone. We love all of you!!!!
Melodie
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